Yeah you better hold on!!! Love this!
Yeah you better hold on!!! Love this!
As I started to learn more about what metastatic breast cancer was, I noticed it seemed to be divided from all the other stages of breast cancer. I did not understand at that time why. I felt alone and like I did not fit in anywhere. At the support centre I was too young for the metastatic group and too advanced for the breast cancer group. I had become a member of a club I had no wish to join.
The truth is there is more hope in the other stages, they are curable. All other stages are avoiding this stage and funding goes to them. I am thrilled at how far we have come to beat breast cancer with awareness, early detection, fundraising and research milestones. Life expectancy has risen and there are more and more survivors every day! However, 20-30% of women will advance to MBC (metastatic breast cancer).
My ribbon is not PINK, I wish it was but sadly it is not.
The average percentage of all breast cancer funds raised that goes towards metastatic breast cancer is 2%
MBC is a death sentence. It is chronic and progressive. Treatments will never stop. The average life expectancy is 24-36 MONTHS, most die within 3 years. 20% of us live to 5 years. THESE STATISTICS HAVE NOT CHANGED IN 20 YEARS
Our mantra- STAGE 4 NEEDS MORE
We are known to be meta-thrivers, lifers, meta-vivors. We are not survivors we are fighters and live everyday striving to combat the life-taking disease occupying our bodies. I am proud now to be one of these people, finding strength, joy, love and one day a cure! I write this today in hopes to bring more awareness and understanding to this confusing disease.
I share this video, of a woman, mother, wife, friend and fighter! Her video epitomizes what most of us lifers feel and think everyday! The first time I saw it, I was overwhelmed with a connection to this stranger I had so much in common with, she understood me and I her! She took the words out of my heart and soul! Sadly she lost her battle January 12th at the age of 42, but her incredible message deserves to be shared to the world! Rest well Holley
I will repeat my vow to beat statistics and fight like a girl everyday! I will continue my battle to annihilate the uninvited squatter in my body! I hope help inform,guide and inspire! Above all I hope to live and someday see the cure!
Here are a few links:
I am a giant fan of Michael Jackson!! His music moves my soul and body! I dare you not to dance even a little!!!
As you all know, for the last little while, my lovely wife, Krista has been blogging about her experiences with stage 4 breast cancer. I can see first hand that her blogs have been very therapeutic for her, and informative, and entertaining for her readers. I’m very proud of her.
When thinking of subjects to discuss, Krista and I decided it would be an interesting opportunity to deliver my experiences as a husband and father.
This whole journey has been a roller coaster of emotions. Krista and I can be very different people emotionally and in the way we process information.
The very beginning started with Krista and I laying in bed. Krista was showing me her breast and was concerned about abnormalities. I told her it’s likely nothing ( and I believed it was nothing ), and told her to get it checked. This is where it all starts. Krista is the realist, and I’m the never ending optimist.
When she did get it checked, and was booked tests for the next day, she phoned my cell crying. Again, I could not believe MY wife had breast cancer. And again, I told her it was probably nothing.
Fast forward to our first meeting with the surgeon, to do a biopsy. Shit was getting real now. The doctor left the room, but he left his computer screen on. As Krista sat on the examining table, I read the notes as quickly as I could. In these notes, the examining doctor said she believes Krista had breast cancer. I almost dropped to the floor. All I had in my mind was I have to hold my self together. Krista was already scared.
The doctor came in and explained that Krista more than likely had breast cancer, but until the biopsy came back, we didn’t know what stage or what type. Stage? Type? I thought breast cancer was breast cancer. Cut the thing off and be done with it. Boy was I wrong.
When we got home that day, and pulled in the driveway, it finally sunk in and I lost it. I started screaming and crying like a toddler having a temper tantrum. IT’S NOT FUCKING FAIR!!!!!!!!!!
As the weeks went on, and the appointments increased, we started to understand what was happening, and her diagnosis. I’m not going to go into too much detail about the diagnosis, because Krista has done that, I’m just going to talk about my thought process during the last 2 years.
When something like this happens, the first thing you do as a man is have a pity party in your mind. “This can’t be happening”. There’s a feeling of helplessness that is unimaginable. I’m supposed to protect my family, and my wife has this life sucking disease, that I’m unable to fight. There’s been countless times that I wished that this was happening to me instead. I think of my kids and think they need their mother more than they need me. As silly as this sounds, its how I feel.
Ahhh, the kids. They are a huge factor in how I process this. Ethan is 14, and becoming a young man, and I feel very confident that I can impart my manly wisdom and help him into adulthood. But lets be honest, he is his Mama’s boy. Naomi on the other hand is 8, and when I think about her and the prospect of raising her on my own, all I have is numerous Who’s the Boss episodes running through my head.
It’s weird. When I think about losing my wife, even though it’s likely years from now, I always think of how I’m going to handle the kids at the age they are now. Then I kind of make little deals with myself, or whomever. “Please let her be here for 10 more years, then Naomi will be 18.” I don’t say that because I don’t want to be a single dad, I say it because one of my fears is that Naomi won’t have real, tangible memories of her mother. How much do you remember from when you were 8?
Krista has been doing a bit of travelling since her diagnoses. Of the times she goes without the kids and I, it’s difficult for me emotionally. Don’t get me wrong, I want her to grab life by the balls and see the world, it’s just that it’s a bit of a dose of reality. For whatever reason, it’s like a taste of what it’ll be like when she’s gone. I haven’t even told Krista this, but when she’s away for any extended period of time, I get anxiety and panic attacks. It starts the day after she leaves, ramps up to full ridiculousness a few days later, then settles down when she’s a day or two away. By no means do I want this to stop her from going anywhere, I’ll just need to find a way to deal with it. On the plus side, the kids behave better for me when she’s not here, and I actually clean stuff.
Sex……There I said it. Krista touched on this, and now I’m going to give my side. Before she was diagnosed, but she wasn’t feeling normal, If I didn’t get it on the regular, I would feel resentful. Yeah, I’m a guy and I want to bang my wife, so sue me. But with the diagnosis came an understanding. I am no longer resentful, and she has limitations that we both understand. Contrary to what she may believe, I still find her as sexy as ever, and cancer has not changed that. Yes I still do bug her for sex, and when she says no, I say ” Well, you don’t have mouth cancer”
There are some positives:
Like anything in life, there are two sides to a coin. Our unwanted guest cancer has brought us some gifts.
It sounds hokey as shit, but it makes you really see what’s important in life. Arguments about money and stupid shit are rare now. We have a united front like never before. It may be a bad thing, but we are very “live in the now”
We have the greatest friends and family in the world, and we are reminded of that day in and day out. The opportunities that have been presented to us are countless. You all know who you are, and we love you.
I feel very educated. I know so much more about breast cancer than I ever wanted to know, but if our experiences help anybody, it would be great.
In closing, through this all, I’ve learned a lot about my wife. She’s a mother, a wife, a fighter, a realist, a dreamer, a gambler, a traveler, an adventurer, a sister, a daughter, a friend, a bitch, the bud of my jokes, but more importantly, she’s Krista, and that’s all I want.
When someone is diagnosed with a disease, you quickly find out who your true friends are. I have to admit, it would be difficult to put up with some of the awful things a person has to go through. It would not be easy to watch a loved one suffer. Feeling helpless to make the person feel better. Let me tell you how shocked and amazed I was to find out who would support me and my family and to drop everything if I needed them.
It is so hard to want to be around people when you know you are hurting them. At one time I felt I had to close myself off to protect the ones I love. I felt guilty and sad and angry about how my cancer and eminent death would hurt everyone. “The Fault In Our Stars” book/movie pretty much nailed it, “I’m like a grenade, and at some point I’m going to blow up and I would like to minimize the casualties” (slightly changed by me) It is so conflicting and lonely, you want to be surrounded by friends and family but you don’t want to hurt anyone, knowing you will cause so much pain is a terrible burden. I felt I shouldn’t have had children, shouldn’t have gotten married, what a horrible person I am to do this to them!
The truth is, I can’t do this alone. In my darkest times, I am beyond thankful to have my family and friends.
Patrick and I have lost a few friends since my diagnosis. A few that we were quite surprised to lose. We do not hold anger toward them, but disappointment for sure. Why? -is the question we ask each other most. Some of the people were close, so close. Perhaps the reason they won’t or can’t be around anymore is that they just can’t handle it. As I said above, it is a challenging situation. Maybe it brings up hurtful memories. Opens their scars they fought so long to heal. Maybe they struggle with their own mortality. Maybe they just really didn’t like us and found their out. Regardless, I learned that they were not meant to be a part of this story. Sometimes as a friend we must put ourselves aside and be there for the other person. That is true friendship and love!
I am surrounded by the most steadfast people! Thank you!!! We have unlimited respect and love for each other. As much as I need them, they need me too! I would be crazy to shield myself away from them!
The people that have stayed around, put up with all my shit, stood by, were leaned on, they are the ones that deserve our time and adoration. They have supported in so many ways: came to appointments, made us dinner, sent a simple card expressing love and support, bringing me your favorite scarf for my bald head, calling or messaging just to check in, dropping by, letting me cry it out, helping us move, listening, going on adventures with me, my god I cannot list all the ways in which my family and friends have touched my life and heart. I swear I would have given up by now without you!
I love you: Patrick, Ethan, Naomi, Tina, Cindy, Aboudy, Noah, Benjamin, Aunt Eileen & Uncle Len, Jenn & Brian, Jen & Mat, Shannon & Mark, Kathy & Vic, Mom, Uncle Donnie & Aunt Linda & Fam, Kyla, Tash & Fred, Aunt Betty & fam, Darlene Dave & Fam, Cousin Kelly. Davey Belkis & Fam, Deedee, Emile & Erin, Lisa & Ricky, Granny, Elaine Pete & Fam, all my cousins!! all my family in New Brunswick East Coast represent!!! All my LifeLabs ladies!! All my readers!! My supporters!! My fellow fighters!!
*If I missed anyone, I am sorry. I do not often proofread, my writing is organic and sometimes I post too quickly. Just remember, I love you too! xo
The day we found out I had to do chemo was devastating. We all cried, Pat, Tina, Cindy and I. We were stunned. “It’s too soon”, I thought. First you told me tamoxifen would last for 5 years, not 6 months. Then the belly shot was supposed to do what tamoxifen failed to do on it’s own. Now we have to do chemo!! Chemo happens quickly for most stages of breast cancer but for stage IV, we start with lighter artillery. Hang on to the big guns until they are needed. The goal: try and control it, not cure it.
Aside from other pleasant side effects of chemo, I prepared myself for the hairloss. Gave myself a cute cut. I was beginning to really love that cut until 2 weeks after starting chemo, my hair started falling out, falling out in clumps. I cried as I sat outside pulling my hand through my hair and looking at the strands all tangled through my fingers. That was a time, I find hard to forget.
It didn’t take long to become a patchy balding mess. A few clumps here and there mixed in with baldness. Pat called me his baby bird lol At that point we decided to just shave it completely. So we sat outside, and Pat pulled out the hair clippers, and my husband shaved my head on a warm summer evening.
I was sad and paranoid with a bald head, felt vulnerable and exposed. Until now, my disease was hidden from the public. No one knew what was happening, it was our own private fight. Everyone will now know I have cancer!
Everybody look at this woman, she’s bald and she has cancer!!!
My sister and Cindy came to my rescue and took me hat shopping. I was so happy to have them there with me. They made me laugh and we had fun. Most of my hard days involve these two women and I love them dearly!! Pat’s Aunt Linda and Uncle Donnie offered to purchase a wig for me. I was overjoyed! I could put it on and not be a cancer patient for a while, what a blessing. It took some time for me to be comfortable with the baldness. I started to not care about what people thought or how they looked at me. I left the house without a cover up! I began to think about it more positively. In a strange way it was empowering. Hey!! yeah I have cancer and look at me! I am living my life and staying strong! It was a bald badge of honour and I was proud!
My observation of other bald men/women or growing out hair was heightened. I couldn’t help but think to myself, “Are you a chemo brother/sister?”, “What’s your story?”, “Is that a choice or not?” There should be a national acknowledgement of some sort. Like a secret club member or respectful nod you know like bikers do when they pass each other. A gang sign of our very own “Cancer represent!!!” Then we will know in that nod, sister/brother stay strong! I get it! Respect!
Here is my suggestion
Get it, it’s a cancer ribbon!! lol
Not wearing makeup, just headed out to see Tash. Thought a lighter post after yesterday’s dark one would be uplifting! Sun is shinning enjoy the day everybody!! Peace out! xo
It’s a dark day, we are all aloud to have them!
The countdown began Feb 15 2014. The giant clock appeared over my head and has never disappeared. Some days it is quieter but sometimes it ticks at a deafening tempo. I know I can’t focus on that stupid clock. Jesus knows I try but how can I ignore the fact that I am going to die, and sooner than expected. Yes, time is a gift but knowing and yet not knowing when the ball is going to drop is maddening!!!!
I try googling my stats dx @ 39, dx as metastatic dx with bone mets and lymph system etc. ect. Just trying to find answers, hope. Tell me my specific prognosis!!!!! The truth is, there is NO specific prognosis. I hate that, but I still search. I torture myself some days.
Cancer is as cancer does!
Shut up stupid clock!! Please grant me the strength to quiet it’s piercing sound!!!